Friday, April 5, 2019

NEW REFRESH STUDY FOR FATIGUE

If you have MS pleas consider participating in this study.

DETAILS
Type of MS: PPMS|PRMS|RRMS|SPMS
Treatment mode of action: To reduce fatigue
Number of Subjects: 610
Medication: 6-week educational fatigue management course
Location: Illinois|Minnesota|Ohio
Institutions: Case Western Reserve University, University of Minnesota, Dalhousie University Contact Information
Dr. Matthew Plow
1-800-631-3272

Funding:

Patient-Centered Outcomes Research Institute

Description

Participants will engage in a six-week program taught by clinical experts (occupational therapists) over the phone, internet, or in-person. Participants may learn strategies that will empower them to reduce fatigue and reduce the impact of fatigue on quality of life.

Please complete intake form at https://redcap.case.edu/surveys/?s=8LAEJLTFRK
 

Monday, April 1, 2019

FDA approves new MS Drug that is a pill for both Relapsing and Progressive MS! Also approves Mavenclad.

The FDA has approved a drug by Novartis called Mayzent. That is a pill for both relapsing and progressive forms of Multiple Sclerosis. This is the first pill of its kind that can treat both forms. For more information check out the manufacturers website at http://www.mayzent.com
The FDA also approved a new pill from EMD Serono called Mavenclad. See https://www.mavenclad.com/en/now-approved/index for more info.


IOMSN Event for Patients

IOMSN
The International Organization of Multiple Sclerosis Nurses will be holding an event on May 4th, 2019 from 11 a.m. to 3:30 p.m. at the Doubletree Hilton Hotel Cleveland East Beachwood. 3663 Park East Drive, Beachwood, Ohio 44122.
Interested patients should register online at http://www.IOMSN.org 
Schedule:

AFTERNOON SESSION FOR PEOPLE LIVING WITH/AFFECTED BY MS
11:00 – 12:00  Community Participants Registration

12:00 – 01:00  Complimentary Lunch

01:00 – 01:30  The Nature of Multiple Sclerosis

01:30 – 02:00  Disease Modifying Therapies in MS: Choices & Challenges

02:00 – 02:15  Break

02:15 – 02:45  Symptomatic Care in MS

02:45 – 03:15  Psychosocial Issues and How Nursing Professionals Can Help

03:15 – 03:30  Q&A / General Discussion

03:30 pm         Adjourn